World Scleroderma Day
Photo by Being There.
Today is World Scleroderma Day!
What is “scleroderma” I hear you ask?
jlcrit describes scleroderma in the following way:
“Scleroderma is an autoimmune disease of the connective tissue. Autoimmune diseases are illnesses which occur when the body’s tissues are attacked by its own immune system. Scleroderma is characterised by the formation of scar tissue (fibrosis) in the skin and organs of the body. This leads to thickness and firmness of involved areas. Scleroderma is also referred to as systemic sclerosis.”
Patrick elaborates further with:
“Scleroderma is called both a rheumatic disease and a connective tissue disease. The term rheumatic disease refers to a group of conditions characterised by inflammation and/or pain in the muscles, joints, or fibrous tissue. A connective tissue disease is one that affects tissues such as skin, tendons, and cartilage.
An individual with scleroderma may develop either a localised or a systemic form of the disease. Localised scleroderma usually affects only the skin on the hands and face. Systemic scleroderma, however, affects the connective tissue in many parts of the body, including the skin, the esophagus, gastrointestinal tract, lungs, kidneys, heart, and other internal organs. It is unusual for localised scleroderma to progress to the systemic form.”
Scleroderma comes in different types and some people may be more afflicted than others. I myself was diagnosed with limited scleroderma when I was just 10 years old, but I have a mild form, although it is monitored regularly for any changes.
Whilst I am one of the lucky ones, others are not and the disease can take over their bodies, this is called diffuse scleroderma. It can lead to other related illnesses with organs and tissues, making everyday activities extremely painful. According to Scleroderma Australia, there are over 5,000 people currently living with disease within Australia.
For further information, please seek out your local scleroderma societies and bodies. Here are just a few:
- Scleroderma Australia
- Scleroderma Support Group – New Zealand
- Scleroderma Foundation – USA
- Scleroderma Society – UK
- FESCA – Federation of European Scleroderma Associations
- International Scleroderma Network
Kate
Community Manager



